Resources

Click on the names below to see the links.

  • Bone Marrow Transplants & Donors

    Blood and Marrow Transplant Information Network

    Patient-friendly handbooks and a quarterly newsletter about transplantation. Links patients with survivors who can provide emotional support. Maintains an online Directory of Transplant Centers in the US and Canada, an online Directory of Drugs used during transplant, and an online Reource Directory. Offers attorney referrals for patients who have insurace disputes. Comprehensive website.

    (888) 597-7674
    www.bmtinfonet.org

    Blood and Marrow Transplant Resources

    BMT resources offer patients having a bone marrow transplant (BMT) or peripheral blood stem cell transplant (PBSCT) access to an enormous amount of information about these procedures. You can learn everything you need to know to sail through your treatment with flying colors. For patients considering a transplant, the tools are provided to help you decide if one of these procedures is your best treatment option.

    (414) 870-4850
    www.BMTresources.org

    National Bone Marrow Transplant Link

    Operates a 24 hour toll free number and provides peer support to bone marrow transplant (BMT) patients and their families. It serves as an information center for prospective BMT patients as well as a resource for health professionals.

    (800) LINK-BMT (800-546-5268)
    www.nbmtlink.org

    National Marrow Donor Program (NMDP)

    Funded by the Federal Government to improve the effectiveness of the search for bone marrow donors. It keeps a registry of potential bone marrow donors and provides free information on bone marrow transplantation. Help available in English, Spanish, Chinese, Japanese, Vietnamese, and Korean.

    (800) MARROW (800-627-7692)
    www.marrow.org

  • Brian Tumors

    American Brain Tumor Association

    Offers free publications, educational programs, social service consultations by telephone, a mentorship program, support group lists, a resource list of physicians, a pen pal program and funds research.

    (800) 866-2282
    www.abta.org

    The Brain Tumor Society

    Provides individualized patient/family information, publishes educational materials, sponsors professional and patient conferences, and funds research.

    (800) 770-8287
    www.braintumor.org

    The Guardian Brain Foundation

    The mission of The Guardian Brain Foundation is to help advance neuroscience research, provide support services and to improve quality of life for adults and children diagnosed with injuries and tumors of the brain.

    (516) 679-5075
    www.guardianbrain.com

    The Tug McGraw Foundation

    The Tug McGraw Foundation was established to raise funds to enhance the quality of life of children and adults with brain tumors and their families by stimulating and facilitating research that addresses the physical, social, emotional, cognitive, and spiritual impact of the disease.

    www.tugmcgraw.org

  • Breast Cancer

    About Breast Health

    A resource for breast cancer patients or other concerned persons, this excellent site provides general information, an informative FAQ and a portal for people to contact physicians and support groups.

    502-629-6950
    www.aboutbreasthealth.com

    National Alliance of Breast Cancer Organizations

    NABCO provides information about breast cancer and acts as an advocate for the legislative concerns of breast cancer patients and survivors.

    (888)80-NABCO (888-806-2226)
    www.nabco.org

    National Breast Cancer Coalition (NBCC)

    A grassroots organization dedicated to ending breast cancer through action and advocacy. NBCC works to increase federal funding for breast cancer research, collaborate with the scientific community to implement new models of research; improve access to high quality health care; and expand the influence of breast cancer advocates in all aspects of the breast cancer decision-making process.

    (800) 622-2838
    www.natlbcc.org

    Sisters Network, Inc.

    Seeks to increase local and national attention to the impact that breast cancer has in the African-American community. All chapters are run by breast cancer survivors and receive volunteer assistance.

    (866)781-1808
    www.sistersnetworkinc.org

    Susan G. Komen for the Cure

    A toll-free breast cancer helpline (1-800-IMAWARE) is answered by trained volunteers whose lives have been personally touched by breast cancer. Breast health and breast cancer materials are available. Also includes information on Komen Race for the Cure.

    (800) IM AWARE (800-462-9273)
    www.komenatlanta.org

    The Eric R. Beverly Family Foundation

    The Foundation is dedicated to providing programs and activities that unite both men and women in promoting education, increasing awareness, and providing support and resources for families who have been touched by breast cancer.

    (770) 614-1779
    www.beverlyfamilyfoundation.org

    Women Stories

    The mission of WomenStories is to inspire, inform and support breast cancer patients by documenting and sharing survivors’ experiences.

    (800)775-5790
    www.womenstories.org

    Y-ME National Breast Cancer Organization, Inc.

    Y-ME serves women with breast cancer and their families through their national hotline (available 24 hours a day) open-door group early detection workshops and support programs. Spanish language help available.

    (800) 221-2141 (English)
    (800) 986-9505 (Spanish)
    www.y-me.org

  • Children & Young Adults

    American Childhood Cancer Organization

    A nonprofit organization that provides information peer support and advocacy. A financial aid list has organizations to which eligible families may apply for assistance.

    (800) 366-CCCF (800-366-2223)
    www.acco.org

    CURE Childhood Cancer

    CURE Childhood Cancer is a non-profit organization dedicated to conquering childhood cancer through research, education, and support of pediatric childhood cancer patients and their families.

    800-443-CURE (800-443-2873)
    www.curechildhoodcancer.org

    Kids Konnected

    Provides friendship, education, and support to kids who have a parent with cancer.

    (800) 899-2866
    www.kidskonnected.org

    Ronald McDonald House

    Offers programs to help children including refuge from the hospital, a “home-away-from-home” and “Family Rooms” within hospitals.

    (630) 823-7048
    www.rmhc.com

    StarBright

    The STARBRIGHT Family Rooom is an online community that provides information and support to help parents care for their seriously ill child. There is a new edition each month featuring information from both caregivers and healthcare professionals. Topics include managing finances, knowing your rights in school and insurance systems, and communicating with doctors. There are also message boards where parents can share their experiences and gain support from each other.

    (800) 315-2580
    www.starbright.org

    The Ulman Cancer Fund for Young Adults

    Serves young adults worldwide through website and offers support groups for young adults affected by cancer, their family and friends.

    (888) 393-FUND
    www.ulmanfund.org

  • Colon Cancer

    Colon Cancer Alliance

    Deeply committed to peer support in the form of a buddies program the Alliance makes it possible for patients to talk one-to-one with survivors and caregivers.

    (877) 422-2030
    www.ccalliance.org

    National Colorectal Cancer Research Alliance

    Co-founded by Katie Couric and Lily Tartikoff, the NCCRA is dedicated to the eradication of colon cancer by harnessing the power of celebrity to promote education, fundraising, research, and early medical screening. The site offers information on screening tests, a health checklist, a factsheet, and information on clinical research.

    (800) 872-3000
    www.nccra.org

    The Susan Cohan Kasdas Colon Cancer Foundation

    The Susan Cohan Kasdas Colon Cancer Foundation hopes to dramatically reduce the death rate of colon cancer throughout the United States and across the world. The foundations aims are to educate everyone about screenings and insure that no individual is unable to access proper screening, providing psychological support for those with the disease and aiding clinical trials and cutting edge research.

    (410) 244-1778
    www.coloncancerfoundation.org

  • General Cancer Information & Support

    American Association for Cancer Research

    AACR is the a leading source of information about advances in the causes, diagnosis, treatment and prevention of cancer. By accelerating the growth and spread of new knowledge about cancer, AACR is on the front lines of the quest for prevention and cure.

    1-866-423-3965
    www.aacr.org/survivorsandadvocates

    American Cancer Society (ACS)

    A voluntary organization that offers a variety of services to patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs. Spanish language help available.

    (800) ACS-2345 (800-227-2345)
    www.cancer.org

    American Institute for Cancer Research (AICR)

    Provides information about cancer prevention, particularly through diet and nutrition. They offer a toll-free nutrition hotline, pen pal support network, and funding of research grants. Spanish language publications available.

    (800) 843-8114
    www.aicr.org

    American Society of Clinical Oncology (ASCO)

    Contains more than 40,000 pages of information, including: cancer resources on the Internet, finding an oncologist, and up-to-date information about cancer policy issues.

    (703) 299-0150
    www.asco.org

    Cancer Care, Inc.

    A national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are available in person, over the phone, and through the agency’s website. Spanish language help available.

    (800) 813-HOPE (800-813-4673)
    www.cancercare.org

    Cancer Consultants

    Cancer Consultants is dedicated to providing comprehensive prevention and treatment information, up-to-date news, and clinical trials listings for cancer patients and their families.

    (208)727-6880
    www.cancerconsultants.com

    Cancer Hope Network

    The Cancer Hope Network provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.

    877-HOPENET (877-467-3638)
    www.cancerhopenetwork.org

    Cancer Support Community

    The Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer.
    1-888-793-9355

    www.cancersupportcommunity.org

    Cancervive, Inc.

    For the past 17 yrears, Cancervive has provided counseling, education and advocacy to cancer patients, family members and health professionals. Our patient education materials (books, documentary videos and games) are being used and valued in every major cancer center.

    (800) 4-TO-CURE
    www.cancervive.org

    CanSurmount

    Canadian organization affiliated with the Canadian Cancer Society. Offers education and support for patients and family members. Attempts to match volunteers who have survived cancer with patients who are in the hospital. Services provided in English and French.

    In Canada, call: 1-888-939-3333
    In the US call: (800) ACS-2345

    Chemocare.com

    Scott Hamilton’s website is designed to provide the latest information about chemotherapy to patients and their families, caregivers and friends.

    www.chemocare.com

    Coalition of National Cancer Cooperative Groups, Inc.

    Provides basic information about cancer clinical trials, a list of available trials offered by seven cooperative groups, and helpful links to patient advocate groups.

    (877) 520-4457
    www.cancertrialshelp.org

    Corporate Angel Network, Inc. (CAN)

    CAN finds free air transportation (on corporate planes) for cancer patients who need medical treatment. Patients must be ambulatory.

    (866) 328-1313
    www.corpangelnetwork.org

    Fertile Hope

    A nonprofit organization dedicated to helping cancer patients with fertility issues.

    1-888-994-4673
    www.fertilehope.org

    National Cancer Institute

    Provides accurate, up-to-date information on many types of cancer, information on clinical trials, resources for people dealing with cancer, and information for researchers and health professionals. Help also available for the deaf and in Spanish.

    (800) 4-CANCER (800-422-6237)
    www.cancer.gov
    For clincial trials 1-888-NCI-1937

    National Cancer Survivors Day Foundation (NCSD)

    National Cancer Survivors Day is the world’s largest cancer survivor event and is celebrated on the first Sunday in June of each year in more than 700 communities throughout North America and elsewhere. A free celebration planning kit is available from the foundation.

    (615) 794-3006
    www.ncsdf.org

    National Coalition for Cancer Survivorship (NCCS)

    NCCS is a network of groups and individuals that offer support to cancer survivors and their loved ones. It provides information and resources on cancer support, advocacy, and quality-of-life issues. A section of the NCCS website and a limited selection of publications are available in Spanish.

    (877) 622-7937
    www.canceradvocacy.org

    National Lymphedema Network, Inc

    Cancer organization focusing on Lymphodema. The network publishes a quarterly newsletter, provides referrals, presents a biennial national conference and offers educational materials for purchase.

    (800) 541-3259
    www.lymphnet.org

    OncoLink

    Affiliated with the University of Pennsylvania Cancer Center. A comprehensive website that provides information about specific types of cancer, updates on cancer treatments and news about research advances.

    (215) 349-5445
    www.oncolink.org

    R. A. Bloch Cancer Foundation, Inc.

    The foundation matches newly diagnosed cancer patients with trained, home-based volunteers who have been treated for the same type of cancer. Informational materials and a list of institutions that offer second opinions also available.

    800-433-0464
    www.blochcancer.org

    The Mautner Project for Lesbians with Cancer

    The Mautner Project of Whitman-Walker Health is committed to improving the health of women who partner with women including lesbian, bisexual and transgender individuals, through primary medical care, support services, education and advocacy.

    (202) 332-5536
    www.mautnerproject.org

    Vital Options International TeleSupport Cancer Network

    An organization that facilitates a weekly syndicated call-in cancer talk show linking callers with other patients, long-term survivors, family members, physicians, researchers and therapists. Offers services in English and French.

    (800) 477-7666
    www.vitaloptions.org

  • GIST (Gastrointestinal Stromal Tumor)

    GIST Support International

    On this site you will find people from around the world who are dealing with GIST, both the experienced and inexperienced, patients and caregivers, nonprofessionals and professionals. Here you will find support, contacts and information for managing life with GIST Cancer.

    www.gistsupport.org

    The Life Raft Group

    The Life Raft Group is a non-profit organization providing support, through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). Our outreach efforts touch patients, and their doctors, throughout the world.

    973-837-9092
    www.liferaftgroup.org

  • Gynecological Cancer

    Foundation for Women’s Cancer

    Dedicated to funding research and training, and ensuring education and public awareness of gynecologic cancer prevention, early detection and optimal treatment.

    312-578-1439

    www.foundationforwomenscancer.org

  • Hospice

    Hospice Education Institute

    Includes programs such as HospiceLink, which helps patients and their families find support services in their communities. They offer information about hospice and palliative care and can refer cancer patients and their families to local hospice and palliative care programs.

    (800) 331-1620
    www.hospiceworld.org

    National Hospice and Palliative Care Organization

    The NHPCO is an association of programs that provide hospice and palliative care. Help in Spanish is also available.

    (800) 658-8898
    www.nhpco.org

  • Kidney Cancer

    Kidney Cancer Association

    A charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. We educate families and physicians, and serve as an advocate on behalf of patients at the state and federal levels in the United States and globally.
    (800) 850-9132
  • Liver Cancer

    About Liver Tumors

    A resource for liver patients and concerned persons. This website is an excellent resource that includes FAQ’s, definitions, as well as a portal for people to contact physicians and support groups.

    (502) 629-3380
    www.aboutlivertumors.com

    American Liver Foundation

    Support and referrals for people with liver cancer and liver diseases.

    (800) GO-LIVER
    www.liverfoundation.org

  • Lung Cancer

    Lung Cancer Alliance

    Offers programs designed to help improved the quality of life of people with lung cancer and their families. Programs include education about the disease, psychosocial support, and advocacy about issues that concern lung cancer survivors.

    (800) 298-2436
    www.lungcanceralliance.org

    American Lung Association

    Dedicated to preventing lung disease and promoting lung health. Services also available in Spanish.

    (212) 315-8700
    www.lungusa.org

  • Mesothelioma

    Mesothelioma Information and Resource Group

    The Mesothelioma Information and Resource Group [MIRG] is an organization created to assist patients, family, friends and loved ones in learning about mesothelioma and other asbestos-related injuries. It is the aim of MIRG to provide information about the disease, its causes, its treatment and its personal and legal impact.

    1-888-802-6376
    www.mirg.org

    Mesothelioma Guide

    Their mission is to guide mesothelioma patients to better health care options and to find a cure.

    www.MesotheliomaGuide.com

    The Mesothelioma Center: Asbestos.com

    Educates individuals and families about Mesothelioma cancer and the dangers of asbestos exposure.

    800-615-2270

    www.asbestos.com

  • Myeloma, Leukemia & Lymphoma

    International Myeloma Foundation (IMF)

    Supports education, treatment, and research for multiple myeloma. They provide a toll-free hotline, seminars, and educational materials for patients and their families. Assistance is provided in many languages.

    (800) 452-CURE (800-452-2873)
    www.myeloma.org

    Lymphatic Research Foundation

    The Lymphatic Research Foundation’s mission is to advance research of the lymphatic system and to find the cause of and cure for lymphatic diseases, lymphedema, and related disorders.

    (516) 625-9675
    www.lymphaticresearch.org

    Lymphoma Research Foundation (LRF)

    LRFA funds research and provides educational information on lymphoma. They offer a helpline for general information on lymphoma, as well as referrals to other resources, oncologists, clinical trials and support groups. A buddy program is available to match newly diagnosed patients with other lymphoma patients who have coped with the disease.

    (800) 500-9976
    www.lymphoma.org

    The Leukemia and Lymphoma Society

    The goal of the society is to find cures for leukemia, lymphoma, Hodgkin’s disease, and multiple myeloma and to improve the quality of life of patients and their families. The society provides patient financial aid for specified treatment expenses and transportation, family support groups, First Connection (a professionally supervised peer support program), referrals and scholl re-rentry materials. Help is also available in Spanish, French, Portuguese, and Japanese.

    (800) 955-4572
    www.lls.org

    The Multiple Myeloma Research Foundation

    Supports research grants and professional and patient symposia on multiple myeloma and related blood cancers. MMRF publishes a quarterly newsletter, and provides referrals and information packets free of charge to patients and family members.

    (203) 972-1250
    www.themmrf.org

  • Oral, Head & Neck Cancers

    International Association of Laryngectomees

    An association of over 230 laryngectomee clubs. Clubs provide pre- and post-operation visits to larryngee cancer patients and continuing support education for laryngectomees and families.

    (866) 425-3678
    www.theial.com/ial

    Mouth Cancer Foundation

    A not-for-profit Internet portal that aims to help patients and health professionals find free information on mouth, head & neck cancers easily. It provides direct links to the relevant sections of existing cancer websites and includes patient stories as well as an active message board, which acts as an an easily accessible online support group. The website includes first hand patient accounts of their experiences, has sections on Treatment, Complications, Cheerful Help, Spiritual Help, HPV Risks, Tobacco Risks, etc.

    www.mouthcancerfoundation.org

    Support for People with Oral and Head and Neck Cancers, Inc.

    (SPOHNC) Offers a program of support and information addressing the emotional, psychological and humanistic needs of oral and head and neck cancer patients.

    (800) 377-0928
    www.spohnc.org

  • Other

    CarePages

    CarePages are patient websites that deliver emotional support to patients and families by making it easy for them to stay in touch during a hospital stay or any time when care giving is needed.

    (773) 348-0720
    www.carepages.com

    Sarcoma Alliance

    Strives to improve the lives of Sarcoma patients through guidance, education support.

    (415) 381-7236
    www.sarcomaalliance.org

    Shop Well With You

    Shop Well with You is a 501(c)3 not-for-profit organization that helps women with a history of cancer improve their quality of life by using clothing as a creative means towards wellness.

    (800) 799-6790
    www.shopwellwithyou.org

  • Ovarian Cancer

    CONVERSATIONS: The International Ovarian Cancer Connection

    Publisher of CONVERSATIONS! The International Newsletter for Those Fighting Ovarian Cancer, a free monthly newsletter providing hope, humor, support and information about treatment options and coping tips. Survivor-to-fighter matching service available.

    (806) 355-2565
    www.ovarian-news.org

    National Ovarian Cancer Coalition

    NOCC raises awareness about ovarian cancer and promotes education about the disease. They also offer support groups, a database of gynecologic oncologists searchable by state, and educational materials.

    (888) OVARIAN (888-682-7426)
    www.ovarian.org

    Ovarian Cancer National Alliance (OCNA)

    Works to increase public and professional understanding of ovarian cancer and to advocate for research. The Alliance distributes materials and sponsors an annual advocacy conference for survivors and families.

    (202) 331-1332
    www.ovariancancer.org

    Michigan Ovarian Cancer Alliance (MIOCA)

    The Michigan Ovarian Cancer Alliance promotes saving women’s lives through the early detection of ovarian cancer and improved treatment outcomes. In addition to community outreach and education, MIOCA provides advocacy, resources and support throughout Michigan.

    www.mioca.org

    The Ovarian Cancer Institute

    Works to find an early diagnostic tool for this disease, to understand the molecular basis of ovarian cancer and to better understand the causes of chemotherapy resistance, leading to the ultimate goal of developing more effective therapies in the treatment of the ovarian cancer.

    404.385.7015
    ovariancancerinstitute.org

    The Ovarian Cancer Research Fund

    Dedicated to advancing research by underwriting investigations to find techinques for early detection and to aid in the development of new therapists. Raises awareness through educational outreach programs, awareness projects, including videos and resource materials.

    (800) 873-9569
    www.ocrf.org

  • Pancreatic Cancer

    Pancreatic Cancer Action Network

    The national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure.

    (877) 272-6226

    www.pancan.org

  • Patient Advocacy

    Patient Advocate Foundation

    Patient Advocate Foundation’s Patient Services provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.

    (800) 532-5274

    www.patientadvocate.org

  • Prostate Cancer

    Men’s Cancer Resource Group

    A support network that runs a 24-hour information line serving prostate cancer survivors and concerned professionals.

    (800) 227-2345

    US TOO! International, Inc.

    A prostate cancer support group organization. Goals of US TOO! are to educate men newly diagnosed with prostate cancer, offer support groups, and provide the latest information about treatment for this disease.

    (800) 80-US TOO (800-808-7866)
    www.ustoo.org

  • Skin Cancer

    About Melanoma

    A resource for melanoma patients and other concerned persons, this site is a definitive resource, providing in-depth definitions, an extensive FAQ and a portal through which to contact physicians and experts.

    502-629-3380
    www.aboutmelanoma.com

    Melanoma International Foundation

    The Melanoma International Foundation was established by people genuinely dedicated to battling melanoma on all fronts. Each board member has experienced melanoma firsthand: either from being a survivor or losing a loved one to the disease. The foundation is on the cutting edge of creating and supporting the most effective programs for the prevention, early detection, and treatment of melanoma.

    866-463-6663 or 610-942-3432
    www.melanomaintl.org

    The Skin Cancer Foundation

    Works to increase public awareness of the importance of taking protective measures against the damaging rays of the sun and teach people how to recognize early signs of skin cancer. They conduct public and medical education programs to help reduce skin cancer.

    (800) SKIN-490 (800-754-6490)
    www.skincancer.org

  • Testicular

    The Testicular Cancer Resource Center

    Devoted to helping people understand testicular and extragonadal germ cell tumors. Specifically, provide accurate and timely information about these tumors and their treatment to anyone and everyone interested. They have information for patients, caregivers, family, friends, and physicians.

    www.tcrc.acor.org

  • Thymic

    Foundation for Thymic Cancer Research

    Offers information on Thymic Cancer and information for patients and physicians.

    www.thymic.org

  • Thyroid

    ThyCa: Thyroid Cancer Survivors’ Association, Inc.

    A network of services that link thyroid cancer survivors and health care professionals around the world. This site maintains current information about thyroid cancer and support services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as their caregivers.

    (877) 588-7904

    www.thyca.org